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Supporting-This ME/CFS Awareness Month-From my blog post, link in bio & stories. 🔹Please feel free to read & share 🙏🏻
“An untreatable, incurable, tortuous disease has the power to do one thing, aside from all of the suffering. It has the ability to render each and every one of us helpless, no discrimination here. ME/CFS is not prejudiced.
The sufferer helpless in the ravages of it’s power. The loved ones, friends and family, left feeling helpless-longing to help but often it seems only so much can be done. It is cruel and unfair.
Today I’m offering you ways you can have power to support the person you care about with ME/CFS: both during M.E Awareness Week and as an ongoing advocate. These are ways in which you can actively aid a movement to better awareness and understanding of the illness the person you know suffers and with such, create better funding opportunities for research which can help.
Let’s take back the power. Thank you in advance.” .
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#chronicillnesscommunity #meawareness #mecfs #cfs #fibro #chronicfatigue #chronicpain #chronicillness #chronicillnesslife #chronicillnesssupport #chronicillnessquotes #chronicillnessblogger #chronicillnesswarrior #myillnessmythoughts #butyoudontlooksick #Invisibleillness #autoimmunedisease #spoonie #spoonies #spooniesupport #pots #treatably #lifewithanillness — 128 2

Supporting-This ME/CFS Awareness Month-From my...

I just feel like this quote is needed, in particularly today. Let’s not forget how hard we’re trying. We try from the moment we open our eyes in the morning to the moment we finally close them and fall asleep at night. We’re trying. That’s all anyone can ask of us. That’s all we can ask of ourselves. Let’s try and be kind to ourselves as we do so. Sending much love to my Spoonie family as always 💖 .
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#qotd #quotestoliveby #motivationalquotes #chronicillnesscommunity #meawareness #mecfs #cfs #fibro #chronicfatigue #chronicpain #chronicillness #chronicillnesslife #chronicillnesssupport #chronicillnessquotes #chronicillnessblogger #chronicillnesswarrior #spooniehumour #butyoudontlooksick #Invisibleillness #arthrits #autoimmunedisease #spoonie #spoonies #spooniesupport #pots #treatably — 375 4

I just feel like this...

RIP Rosie 💙 I’m truly, utterly devastated to hear of yet another loss in our community. She is finally at peace. My thoughts are with her loved ones 💙
Yet again we are reminded of how the need to raise our voices is all the more important, all the more imperative.
Joan McParland of Hope 4 ME & FIBRO charity said: “Amidst all the good things happening 4 May ME Fibro Awareness-we are heartbroken to be reminded why we do what we do We’ve lost another one, who despite cries for help & visit from mental health team-they said they couldn’t help as she was too physically sick.”
🔸🔸🔸🔸🔸Please if you need to, speak to someone. Someone impartial if it helps, do.
@samaritanscharity Call free on 116123 🔹🔹🔹Also available ME Connect @meassociation flagship helpline service 0844 576 5326 (I’ll put link to further information in my bio). No, talking may not take away or change the physical suffering but it can help us cope with enduring it. 💙Sending love to you all 💙 .
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#chronicillnesscommunity #meawareness #mecfs #cfs #fibro #chronicfatigue #chronicpain #chronicillness #chronicillnesslife #chronicillnesssupport #chronicillnessquotes #chronicillnessblogger #chronicillnesswarrior #myillnessmythoughts #butyoudontlooksick #Invisibleillness #arthrits #autoimmunedisease #spoonie #spoonies #spooniesupport #pots #treatably #lifewithanillness — 683 49

RIP Rosie 💙 I’m truly,...

I deep belly laughed at this 😂🤣 Thanks for sharing the laughs @spoonies_united 🙌🏻 .
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#chronicillnesscommunity #meawareness #mecfs #cfs #fibro #chronicfatigue #chronicpain #chronicillness #chronicillnesslife #chronicillnesssupport #chronicillnessquotes #chronicillnessblogger #chronicillnesswarrior #spooniehumour #myillnessmythoughts #butyoudontlooksick #Invisibleillness #arthrits #autoimmunedisease #spoonie #spoonies #spooniesupport #pots #treatably #lifewithanillness — 1045 74

I deep belly laughed at...

“Myalgic Encephalomyelitis (ME), commonly known as Chronic Fatigue Syndrome (CFS) or ME/CFS, is a devastating multi-system disease that causes dysfunction of the neurological, immune, endocrine and energy metabolism systems.
Myalgic Encephalomyelitis (ME) is a systemic neuroimmune condition characterized by post-exertional malaise (a reduction in functioning and a severe worsening of symptoms after even minimal exertion). It causes dysregulation of the immune, nervous, and energy metabolism systems. The effects of ME are devastating enough to leave 25% of patients housebound or bedbound. All people with ME experience a substantial loss of physical or cognitive functioning, but there is a spectrum of severity. The typical ME patient scores more poorly on quality of life surveys than those with multiple sclerosis, stroke, diabetes, renal failure, lung disease, heart failure, and various cancers. Onset can be either sudden or gradual, and the intensity or frequency of specific symptoms can wax and wane. While symptoms can fluctuate significantly from day-to-day, shifts in overall wellness should be measured in years, not weeks or months.”
@meactnet .
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#mecfs #cfsme #millionsmissing #spoonie #sponnies — 198 0

“Myalgic Encephalomyelitis (ME), commonly known...

I’m not sure I’ve related to anything more 😂🤣😂 .
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#chronicillnesscommunity #meawareness #mecfs #cfs #fibro #chronicfatigue #chronicpain #chronicillness #chronicillnesslife #chronicillnesssupport #chronicillnessquotes #chronicillnessblogger #chronicillnesswarrior #spooniehumour #myillnessmythoughts #butyoudontlooksick #Invisibleillness #arthrits #autoimmunedisease #spoonie #spoonies #spooniesupport #pots #treatably #lifewithanillness — 498 15

I’m not sure I’ve related...

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Lifestyle Wellbeing

What the Ladybird heard-Theatre review

By Amy October 18, 2018

Did Hefy Hugh and Lanky Len get our vote? All children have their favourite bedtime stories and lets be honest, all adults who have young children in their lives (I’m talking to all the Mum’s, Dad’s, Granny’s, Pop’s Aunty’s and so on here) we all have our favourite stories that we like to read to …

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